Learning more about ANs

• Inez Peterson's AN research page.
• Resources for doing your own medical research, on- and off-line.
• On the size, growth, and anatomy of Acoustic Neuromas. ^{EDITOR'S CHOICE}
• Learning the lingo - Acoustic Neuroma terminology.
• The Role of Steroids in AN Management and Recovery
• Various tests and studies are available for AN patients.
• AN's benign cousins - meningiomas, epidermoids, hemangiomas, and facial neuromas.
• The Tumor and Your Body: connections

Treatment complications and resources for recovery

AN Treatment Complications

• Directory of complications for AN treatments. ^{EDITOR'S CHOICE}
• Statistics on rates of complications for surgical vs. radiosurgical options
• Acoustic Neuroma treatments and headaches; some have delayed onset.
• Central vestibular neuropathy.
• Cognitive difficulties and emotional problems.
• CSF leaks and hydrocephalus.
• Post-surgical use of steroids: watch out for complications!
• Lost or altered sense of taste.
• Tinnitus (ringing in ears).

Resources for recovery

• Tips for successful recovery. ^{EDITOR'S CHOICE}
• Caring for eyes that can't take care of themselves.
• Advanced hearing systems can help those hard-of-hearing.
• Tackling headaches head on.
• Dental problems are common with facial paralysis, but can be avoided.
• Aromatherapy - an alternative for treating headaches.
• Resources to help you with vestibular rehabilitation.
• Battling vertigo - vestibular exercises that work.
• Non-traditional alternatives to help with recovery - by a therapist.
• Brian Lloyd's "One Ear to the Ground" web site is great for post-surgery patients with difficulties. 

Acoustic Neuroma Stories

In the AN Archive

• The Archive's Patient Directory has many stories by Acoustic Neuroma patients. ^{EDITOR'S CHOICE}
• Successful Acoustic Neuroma surgeries do not mean being happy - patient testimonials.
• Finding out about your Acoustic Neuroma options is a struggle - patient stories.
• A collection of poems by Rony Kess-El about his FSR experience.

Other sites with AN Stories

• ANA guest book - a treasure of patient testimonials (also see the '97, '96, '95 editions).
• CyberKnife Patient Support web site - has stories of AN patients treated with CyberKnife.
• Visit Tony's Surgical AN Story site for more patient stories.
• ANA's Wisconsin chapter has a homepage with several patient stories.
• Some of the other AN Patient sites also contain stories.
• Cindy's story has a very thorough description of post-surgery headaches.

Acoustic Neuroma Links

Pages by AN Patients

• International AN organizations:  ANA (USA), BANA (England), Denmark, ANAC (Canada), France, Australia (New South Wales), Belgium (french-speaking).
• AN World -- we recommend the mailing list for AN patients that can be found there!
• Acoustic Neuroma Association of New Jersey
• Seattle's Acoustic Neuroma Group - a huge collection of AN-related material
• Inez Peterson's AN research page.
• Brian Lloyd's "One Ear to the Ground" web site is great for post-surgery patients with difficulties.  ^{EDITOR'S CHOICE}
• Art Wiggins' Acoustic Neuroma Physicians page.
• Acoustic Neuroma patient web ring

Related organizations for AN patients

• IRSA, International Radiosurgery Association - check out their overview page.
• CyberKnife Patient Support web site - providing support for those who either have been or are considering treatment with the Cyberknife. About half the group were treated for Acoustic Neuromas and the rest a mixture of other lesions.
•  A site for BAHA hearing device users, run by UK patients.
• Al Musella's Brain Tumor site - not just about ANs, but it has some great resources (such as a dictionary and some videos).

Treatment and Therapy Providers

• The Acoustic Neuroma Radiosurgery Page at Johns Hopkins Hospital
• Acoustic Neuroma Web Site at University of Pittsburgh Department of Neurosurgery. 
• Acoustic Neuroma Radiosurgery Articles Page at Staten Island Univ. Hospital
• Vestibular problem treatment in Washington DC
• Dr. Kenneth Ott, San Diego: Neurosurgical Medical Clinic, San Diego Gamma Knife Ctr
• Alliance Tinnitus and Hearing Center in Atlanta, GA -- for tinnitus treatment.

Other useful AN pages

• Johns Hopkins "What's New" site for AN Research Literature
• Jim Kenzig's Acoustic Neuroma links
• John Cameron's site on the benefits of radiation - a curious viewpoint
• There are several sites with AN Patient stories - see our AN Stories section.
• Facial paralysis and reanimation information.
• Personal advice from experts on various AN-related topics.

Medical Information Web Sites

• MedExplorer - health and medical information center.
• Florida Medical Network
• Wellness Interactive Network
• Health Care Information Resources
• Medical Trends medical network
• MedSurf, a wed-based health guide
• The Health section of OpenHere, resources for the family.

More links

Do you know any places that might want to link to the Archive?  Please let us know!

Acoustic Neuroma World

Our views on some important AN issues

• ENTs play a key role in the AN decision process. Here is our letter to ENT News.
• Acoustic Neuroma Hall of Shame. 
• ANA USA - how well does it serve newly diagnosed patients?
• The surgeon's duty of informed consent - is it being breached?
• Our call for a new NIH consensus statement.^{EDITOR'S CHOICE}
• There is data that AN patients are not seeing; we would benefit from more disclosure.
• Acoustic Neuroma textbook - reading between the lines.

For reference

• International Acoustic Neuroma news.
• Acoustic Neuromas in the literature.

Miscellaneous

• 10 rules to live by - for newly diagnosed AN patients. ^{EDITOR'S CHOICE}
• Contributions by Archivers.
• Collection of poems by Rony Kess-El about his FSR experience.
• A Time to Heal - prayers and Bible verses by Deb Vellines to help AN patients deal with this diagnosis;

Acoustic Neuroma Miscellania

• Acoustic Neuroma movie - we'd like to see one made!
• Severe problems after Acoustic Neuroma surgery: balance, headaches.
• The pros and cons of radiosurgery.
• A letter to a new AN patient posting for basic info.

About the AN Archive

The Acoustic Neuroma Patient Archive is a patient-run informational web site, dedicated to providing newly diagnosed Acoustic Neuroma patients with information to help evaluate their treatment options and to make an informed decision.  It is affiliated with T.H.E. Brain Trust.

• If we have been helpful to you, please consider making a donation -- help us help others!
• We are looking for volunteers -- please join our team!
• The AN Archive advisory board and the AN Archive constitution
• A conversation with the AN Archive editor.
• The Archive is always a work in progress; consult What's New section to see what was added since your last visit.
• We welcome new listings and stories in the Patient Directory.
• Before using any information from this site, please take a look at our disclaimer.

Here are some Dear Editor letters that our visitors wrote...  Please write too!

Before using any information from this site, please take a look at our disclaimer.

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